I’ve made several references through-out these things concerning my pain. I guess it’s time for me to explain myself. I’ve been putting this off for a reason, for a very good reason…I don’t like talking about it. I grew up in a world where pain was something “to get over.” “Shake it off.” “It’s not that bad.” “Man up.” Therefore dealing with chronic pain is something that I have had to cope with. If that is even possible. But this probably doesn’t make it any sense. Let me try to explain.
I am a 35 year old man. I am 5’8″ and weigh about 150 pounds. I’m in pretty good shape in terms of musculature and overall fitness…except that I have rheumatoid arthritis in my hands, fibroid myalgia, a herniated disc in my neck, and about four bone spurs connecting vertebra in my neck. Wow that sounds bad. Basically I have the joints of a man twice my age.
About seven years ago, I started having pain in my hands. At first, I thought that it was just soreness or stiffness related to the weather or something. But it started to get worse. My wife eventually persuaded me to go to the family doc. He did blood work and x-rays and immediately referred me to a rheumatologist. I thought there must be some mistake. I was too young for that. But again, my wife persuaded me to go. My new doc informed me that I had a VERY aggressive form of autoimmune disease that was literally eating away at the tissue between my joints in my hands and that if I didn’t start some potentially liver destroying and rather painful treatment immediately, I would soon loose the use of my hands. Nice huh.
For a while, I had to give myself shots in the stomach every two weeks. OUCH! But it helped. I had to get blood work done once a month to make sure my medicine wasn’t destroying my liver. And then I started to feel numbness in my arms. It felt like my arms were going to sleep all the time. This time I was sent to a Brain doc who used scary initials like “MS,” but I don’t have MS. Apparently my disease had shifted due to the medication and started eating the covering off of my nerves. Oh and that was when the MRI discovered all my neck problems.
So now I get an IV treatment once a month for my arthritis, but I started having pain other places, and that is when they decided that I have Fibroid Myalgia (I don’t think I’m spelling it right…and I don’t care). SO now I take medicine for that.
WOW! POOR BABY! Even now writing about this I feel like I’m being a wimp. That I should just “take it like a man.” Everyone has problems. That’s wrong. Chronic pain can really mess with your head. I feel like I am in a bad mood all the time. Luckily, I’m usually a pretty good actor, but it’s hard acting all the time. And it makes me very, very tired, but of course, I don’t sleep well because of the pain, which makes me even more tired.
But I think the worst part of it is that I can’t do the things that I really want to do…and people don’t really understand my diseases. I don’t look sick. I look pretty healthy. So when people ask me to help them carry things or move stuff, and I tell them that I can’t; they give me a look like, “yea right.” Eventually I will learn to deal with it better. I’m having more good days. I’m having more days when I fell better.
Oh well. That’s enough for now.